Featuring

The Full Stop. Blues Brothers

Contagious

Kyle Js

Pete Kenway

Wayne Roberts

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My name is Ava and I am nearly 3 years old. I live in Prestatyn, North Wales with my Mummy, Daddy and little sister Scarlett. I was born on 6th February 2012, 9 weeks early and weighed a tiny 3lb 12oz. I had to spend 5 weeks in special care baby unit receiving oxygen and being fed through a tube until I learnt to do it myself.

My Mummy and Daddy started getting worried that I wasn’t meeting my gross motor skill milestones. I couldn’t crawl until I was 20 months old and I still can’t walk. I had lots of tests and visited lots of doctors and then on 2nd April 2014 my Paediatrician told Mummy and Daddy I had Spastic Diplegic Cerebral Palsy. This was caused by my premature birth and means my legs are very stiff and this causes me a lot of discomfort. I also find it difficult to flatten my feet.

I find every day activities very difficult and my knees hurt from always crawling. I have no core strength to stand up on my own. I wear splints and I am learning to walk with a kaye walker. I have to do daily physiotherapy to help with relieving the tightness (spasticity) in my legs and feet, but as I get older the tightness will become worse.

I am a very bright and chatty little girl and I have lots of friends and with your help I can have a better future. There is a life changing operation called SDR (Selective Dorsal Rhizotomy) that I could have in St Louis Children’s Hospital, USA, which would be carried out by Dr TS Park (who Mummy and Daddy say is the best in the world).

The SDR operation will permanently remove all the spasticity in my legs and help me build muscle so that I can learn to walk, improve my posture and gain flat feet so hopefully one day I can run around with my sister, dance with my friends and play football with my Daddy.

This operation is not funded by the NHS in the UK and also the criteria is different from that in the USA. We need to raise approximately £80,000 for Tree of Hope to pay for the operation, travel to USA and accomodation (I would need to stay there for at least a month), and then I would need to pay for intensive physio and equipment in the UK for at least 2 years post op.

Should we exceed the target amount or if we do not raise enough funds, or if they cannot be used for any other reason, the funds raised will go to the general funds of Tree of Hope to assist other sick children.

I know I have a long road ahead of me, but I am a very determined little girl and hopefully with your support I could be one step closer to reaching my goal.